Hereditary Hemorrhagic Telangiectasia: Success of the Osler Calendar for Documentation of Treatment and Course of Disease

URN to cite this document:: urn:nbn:de:bvb:355-epub-514626
DOI to cite this document:: 10.5283/epub.51462

Seebauer, Caroline T. ; Freigang, Viola

; Schwan, Franziska E.

; Fischer, René ; Bohr, Christopher ; Kühnel, Thomas S.

; Andorfer, Kornelia E. C.

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Date of publication of this fulltext: 20 Jan 2022 13:49

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Abstract

Hereditary hemorrhagic telangiectasia (HHT; Rendu-Osler-Weber syndrome) affects the capillary and larger vessels, leading to arteriovenous shunts. Epistaxis is the main symptom impairing quality of life. The aim of the Osler Calendar is to offer information about the extent of the systemic disease and the current state of treatment. A care plan with information on the rare disease and ...