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Hereditary Hemorrhagic Telangiectasia: Success of the Osler Calendar for Documentation of Treatment and Course of Disease

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Seebauer, Caroline T. ; Freigang, Viola ; Schwan, Franziska E. ; Fischer, René ; Bohr, Christopher ; Kühnel, Thomas S. ; Andorfer, Kornelia E. C.
License: Creative Commons Attribution 4.0
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Date of publication of this fulltext: 20 Jan 2022 13:49


Hereditary hemorrhagic telangiectasia (HHT; Rendu-Osler-Weber syndrome) affects the capillary and larger vessels, leading to arteriovenous shunts. Epistaxis is the main symptom impairing quality of life. The aim of the Osler Calendar is to offer information about the extent of the systemic disease and the current state of treatment. A care plan with information on the rare disease and ...


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