Validation of a German translation of the CARE questionnaire and its implementation as electronic PROM to assess patient-reported postoperative convalescence and recovery after major urological surgery

URN to cite this document:

urn:nbn:de:bvb:355-epub-564842 Copy

DOI to cite this document:

10.5283/epub.56484 Copy

Wessels, Frederik ; Lenhart, Maximilian ; Neuberger, Manuel ; Mühlbauer, Julia ; Huber, Johannes ; Breyer, Johannes ; Nuhn, Philipp ; Michel, Maurice S. ; Koenig, Julian ; Kriegmair, Maximilian C.

License: Creative Commons Attribution 4.0 PDF - Published Version (1MB)

Date of publication of this fulltext: 29 Feb 2024 12:28

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Details

Item type:	Article
Open Access Type:	DEAL (Springer) - Non UR
Journal or Publication Title:	World Journal of Urology
Publisher:	Springer
Place of Publication:	NEW YORK
Volume:	39
Number of Issue or Book Chapter:	10
Page Range:	pp. 3979-3991
Date:	8 May 2021
Institutions:	Medicine > Lehrstuhl für Urologie
Identification Number:	Value Type 10.1007/s00345-021-03713-6 DOI
Keywords:	QUALITY-OF-LIFE; ASSISTED RADICAL CYSTECTOMY; OUTCOME MEASURES; IMPROVEMENT; Prostatectomy; Nephrectomy; Cystectomy; Patient-reported outcome; Outcome measures; Quality of life; CARE
Dewey Decimal Classification:	600 Technology > 610 Medical sciences Medicine
Status:	Published
Refereed:	Yes, this version has been refereed
Created at the University of Regensburg:	Partially
Item ID:	56484

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Abstract

Purpose To validate a German translation of the convalescence and recovery evaluation (CARE) as an electronic patient-reported outcome measure (ePROM) and use it to assess recovery after major urological surgery. Methods The CARE questionnaire was provided to patients scheduled for major urological surgery preoperatively, at discharge and 6 weeks postoperatively, using an ePROM system. ...

Abstract

Purpose
To validate a German translation of the convalescence and recovery evaluation (CARE) as an electronic patient-reported outcome measure (ePROM) and use it to assess recovery after major urological surgery.

Methods
The CARE questionnaire was provided to patients scheduled for major urological surgery preoperatively, at discharge and 6 weeks postoperatively, using an ePROM system. Cronbach's alpha, inter-scale correlations and confirmatory factor analysis (CFA) were used to validate the translation. Mixed linear regression models were used to identify factors influencing CARE results, and a multivariable logistic regression analysis was done to determine the predictive value of CARE results on quality of life (QoL).

Results
A total of 283 patients undergoing prostatectomy (n = 146, 51%), partial/radical nephrectomy (n = 70, 25%) or cystectomy (n = 67, 24%) responded to the survey. Internal consistency was high (alpha = 0.649-0.920) and the CFA showed a factor loading > 0.5 in 17/27 items. Significant main effects were found for the time of survey and type of surgery, while a time by type interaction was only found for the gastrointestinal subscale (chi(2)((4)) = 30.37, p < 0.0001) and the total CARE score (TCS) (chi(2)((4)) = 13.47, p = 0.009) for cystectomy patients, meaning a greater score decrease at discharge and lower level of recovery at follow-up. Complications demonstrated a significant negative effect on the TCS (chi(2)((2)) = 8.61, p = 0.014). A high TCS at discharge was an independent predictor of a high QLQ-C30 QoL score at follow-up (OR = 5.26, 95%-CI 1.42-19.37, p = 0.013).

Conclusion
This German translation of the CARE can serve as a valid ePROM to measure recovery and predict QoL after major urological surgery.

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Metadata last modified: 11 Sep 2024 11:17

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