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A Nation-Wide, Multi-Center Study on the Quality of Life of ALS Patients in Germany

Peseschkian, Tara ; Cordts, Isabell ; Günther, René ; Stolte, Benjamin ; Zeller, Daniel ; Schröter, Carsten ; Weyen, Ute ; Regensburger, Martin ; Wolf, Joachim ; Schneider, Ilka ; Hermann, Andreas ; Metelmann, Moritz ; Kohl, Zacharias ; Linker, Ralf A. ; Koch, Jan Christoph ; Büchner, Boriana ; Weiland, Ulrike ; Schönfelder, Erik ; Heinrich, Felix ; Osmanovic, Alma ; Klopstock, Thomas ; Dorst, Johannes ; Ludolph, Albert C. ; Boentert, Matthias ; Hagenacker, Tim ; Deschauer, Marcus ; Lingor, Paul ; Petri, Susanne ; Schreiber-Katz, Olivia



Abstract

Improving quality of life (QoL) is central to amyotrophic lateral sclerosis (ALS) treatment. This Germany-wide, multicenter cross-sectional study analyses the impact of different symptom-specific treatments and ALS variants on QoL. Health-related QoL (HRQoL) in 325 ALS patients was assessed using the Amyotrophic Lateral Sclerosis Assessment Questionnaire 5 (ALSAQ-5) and EuroQol Five Dimension ...

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