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The European Narcolepsy Network (EU-NN) database

Khatami, Ramin ; Luca, Gianina ; Baumann, Christian R. ; Bassetti, Claudio L. ; Bruni, Oliviero ; Canellas, Francesca ; Dauvilliers, Yves ; Del Rio-Villegas, Rafael ; Feketeova, Eva ; Ferri, Raffaele ; Geisler, Peter ; Högl, Birgit ; Jennum, Poul ; Kornum, Birgitte R. ; Lecendreux, Michel ; Martins-da-Silva, Antonio ; Mathis, Johannes ; Mayer, Geert ; Paiva, Teresa ; Partinen, Markku ; Peraita-Adrados, Rosa ; Plazzi, Guiseppe ; Santamaria, Joan ; Sonka, Karel ; Riha, Renata ; Tafti, Mehdi ; Wierzbicka, Aleksandra ; Young, Peter ; Lammers, Gert Jan ; Overeem, Sebastiaan



Abstract

Narcolepsy with cataplexy is a rare disease with an estimated prevalence of 0.02% in European populations. Narcolepsy shares many features of rare disorders, in particular the lack of awareness of the disease with serious consequences for healthcare supply. Similar to other rare diseases, only a few European countries have registered narcolepsy cases in databases of the International ...

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