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Wang, Yuhang ; Blobel, Bernd ; Yang, Bian

Reinforcing Health Data Sharing through Data Democratization

Wang, Yuhang, Blobel, Bernd and Yang, Bian (2022) Reinforcing Health Data Sharing through Data Democratization. Journal of Personalized Medicine 12 (9), p. 1380.

Date of publication of this fulltext: 14 Feb 2023 16:02
Article
DOI to cite this document: 10.5283/epub.53750


Abstract

In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A ...

In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A programmatic design of an HD platform was elaborated, followed by an introduction of one of our critical designs-a "reverse onus" mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data-sharing platform.



Involved Institutions


Details

Item typeArticle
Journal or Publication TitleJournal of Personalized Medicine
Publisher:MDPI
Place of Publication:BASEL
Volume:12
Number of Issue or Book Chapter:9
Page Range:p. 1380
Date26 August 2022
InstitutionsMedicine > Zentren des Universitätsklinikums Regensburg > eHealth Competence Center
Identification Number
ValueType
10.3390/jpm12091380DOI
KeywordsCARE TRANSFORMATION; PRIVACY; TRUST; PHEALTH; INFORMATION; MANAGEMENT; SECURITY; MODEL; eHealth; data democratization; health data infrastructure; privacy-enhancing technologies
Dewey Decimal Classification600 Technology > 610 Medical sciences Medicine
StatusPublished
RefereedYes, this version has been refereed
Created at the University of RegensburgPartially
URN of the UB Regensburgurn:nbn:de:bvb:355-epub-537507
Item ID53750

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