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Reinforcing Health Data Sharing through Data Democratization
Wang, Yuhang, Blobel, Bernd and Yang, Bian (2022) Reinforcing Health Data Sharing through Data Democratization. Journal of Personalized Medicine 12 (9), p. 1380.Date of publication of this fulltext: 14 Feb 2023 16:02
Article
DOI to cite this document: 10.5283/epub.53750
Abstract
In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A ...
In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A programmatic design of an HD platform was elaborated, followed by an introduction of one of our critical designs-a "reverse onus" mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data-sharing platform.
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Details
| Item type | Article | ||||
| Journal or Publication Title | Journal of Personalized Medicine | ||||
| Publisher: | MDPI | ||||
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| Place of Publication: | BASEL | ||||
| Volume: | 12 | ||||
| Number of Issue or Book Chapter: | 9 | ||||
| Page Range: | p. 1380 | ||||
| Date | 26 August 2022 | ||||
| Institutions | Medicine > Zentren des Universitätsklinikums Regensburg > eHealth Competence Center | ||||
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| Keywords | CARE TRANSFORMATION; PRIVACY; TRUST; PHEALTH; INFORMATION; MANAGEMENT; SECURITY; MODEL; eHealth; data democratization; health data infrastructure; privacy-enhancing technologies | ||||
| Dewey Decimal Classification | 600 Technology > 610 Medical sciences Medicine | ||||
| Status | Published | ||||
| Refereed | Yes, this version has been refereed | ||||
| Created at the University of Regensburg | Partially | ||||
| URN of the UB Regensburg | urn:nbn:de:bvb:355-epub-537507 | ||||
| Item ID | 53750 |
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