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Müller, Karolina ; Vogl, Louisa ; Knüttel, Helge ; Greulich, Timm ; Lammert, Frank ; Strnad, Pavel ; Vogelmeier, Claus Franz ; Wilkens, Marion ; Bals, Robert ; Koller, Michael

Supporting Data for the Manuscript "Patient-related outcome measures for use in patients with alpha-1-antitrypsin deficiency: Results of a systematic selection process"

Müller, Karolina , Vogl, Louisa, Knüttel, Helge , Greulich, Timm , Lammert, Frank, Strnad, Pavel, Vogelmeier, Claus Franz, Wilkens, Marion, Bals, Robert and Koller, Michael (2025) Supporting Data for the Manuscript "Patient-related outcome measures for use in patients with alpha-1-antitrypsin deficiency: Results of a systematic selection process". (Unpublished)

Date of publication of this fulltext: 14 May 2025 11:16
Other
DOI to cite this document: 10.5283/epub.76669


Abstract

We aimed to identify a patient-reported outcome measure that captures generic, lung-specific, and liver-specific quality of life in individuals with alpha-1-antitrypsin deficiency. To ensure transparency and reproducibility, we provide access to the supporting data for the manuscript “Patient-related outcome measures for use in patients with alpha-1-antitrypsin deficiency: Results of a systematic ...

We aimed to identify a patient-reported outcome measure that captures generic, lung-specific, and liver-specific quality of life in individuals with alpha-1-antitrypsin deficiency. To ensure transparency and reproducibility, we provide access to the supporting data for the manuscript “Patient-related outcome measures for use in patients with alpha-1-antitrypsin deficiency: Results of a systematic selection process.”
The supporting data include: 1 Search documentation, 2 PRISMA-S checklist, 3 Overview of records and screening results (hits).


Involved Institutions


    Details

    Item typeOther
    Open Access Type:Primary Publication
    Date9 May 2025
    InstitutionsUNSPECIFIED
    Related URLs
    URLURL Type
    urn:nbn:de:bvb:355-epub-508108Orginal work
    KeywordsAlpha-1-Antitrypsin Deficiency; Patient-Reported Outcome Measure; Supporting Data for Systematic Selection Process
    Dewey Decimal Classification600 Technology > 610 Medical sciences Medicine
    StatusUnpublished
    RefereedNo, this version has not been refereed yet (as with preprints)
    Created at the University of RegensburgYes
    URN of the UB Regensburgurn:nbn:de:bvb:355-epub-766692
    Item ID76669

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